Useful
addresses
The British Pain Society and its Patient Liaison Committee has
put together a list of UK-based organisations, many voluntary, that
specialise in helping people affected by pain. The organisations
are listed alphabetically under each pain category; unless stated
otherwise, all the organisations are registered charities.
Ankylosing Spondylitis, Arthritis,
Back Pain, Cancer,
Complex Regional Pain Syndrome, Cystitis,
Disability, Dystonia,
Endometriosis, Fibromyalgia,
Gout, Herpes, Intestinal
Disorders, Kidney, Lichen
Planus, Lupus, ME,
Meningitis, Migraine,
Motor Neurone, MS,
Osteoporosis, Paget's
Disease, Pain, Parkinson's,
Pelvic Pain, Polio,
Reflex Sympathy Dystrophy, Shingles,
Sickle Cell, Stroke,
Trigeminal Neuralgia, Vulval
Pain, General
Please note: The British Pain Society is not responsible for the
content of external websites.
Ankylosing Spondylitis
National Ankylosing Spondylitis Society
PO Box 179
Mayfield
E. Sussex TN20 6ZL
Tel. 01435 873527
www.nass.co.uk
Arthritis
Arthritis Research Campaign
Copeman House
St Mary's Court
St Mary's Gate
Chesterfield
Derbyshire S41 7TD
Tel: 0870 850 5000
www.arc.org.uk
Arthritis & Musculoskeletal Alliance
(ARMA)
Bride House
18-20 Bride Lane
London
EC4Y 8EE
Tel: 020 7842 0910/11
www.arma.uk.net
Arthritis Care
18 Stephenson Way
London
NW1 2HD
T: 020 7380 6555
Helpline 0808 800 4050
Helpline for those under 26: 0808 808 2000
www.arthritiscare.org.uk
Offers self-management courses
National Rheumatoid Arthritis Society
Unit B4 Westacott Business Centre
Westacott Way
Littlewick Green
Maidenhead
Berks. SL6 3RT
Tel: 01628 823524
Helpline: 0845 458 3969
www.rheumatoid.org.uk
Back Pain
BackCare
16 Elmtree Road
Teddington
Middlesex
TW11 8ST
Tel: 020 8977 5474
Helpline: 0870 950 0275
www.backcare.org.uk
Brain and Spine Foundation
7 Winchester House
Cranmer Road
Kennington Park
London
SW9 6EJ
Tel: 020 7793 5900
Helpline: 0808 808 1000
www.brainandspine.org.uk
Spinal Injuries Association
SIA House
2 Trueman Place
Oldbrook
Milton Keynes
MK6 2HH
Tel: 0845 678 6633
Helpline: 0800 980 051
www.spinal.co.uk
Think-Back
PO Box 6323
CM1 2FX
Tel: 07811 222 044
www.think-back.org.uk
* Think-Back is not a registered charity
Cancer
Breast Cancer Care
Kiln House
210 New Kings Road
London SW6 4NZ
Tel: 020 7384 2984
Helpline 0808 800 6000
www.breastcancercare.org.uk
CancerBACUP
3 Bath Place
Rivington Street
London
EC2A 3JR
Tel: 020 7739 2280
Helpline: 0808 800 1234
www.cancerbacup.org.uk
Leukaemia Care Society
1 Birch Court
Blackpole East
Worcester WR38SG
Tel: 01905 755 977
Helpline: 0800 169 6680
www.leukaemiacare.org.uk
Lymphoma Association
PO Box 386
Aylesbury
HP20 2GA
Tel: 01296 619 400
Helpline: 0808 808 5555
www.lymphoma.org.uk
Website for those under 30: www.lifesite.info
Macmillan Cancer Relief
Macmillan CancerLine
89 Albert Embankment
London
SE1 7UQ
Tel: 020 7840 7840
Helpline: 0808 8080 2020
www.macmillan.org.uk
Brain Tumour UK
Tower House
Latimer Park
Chesham, Bucks
HP5 1TU
Tel: 01494 549180
National Helpline: 0845 4500 386
enquiries@braintumouruk.org.uk
www.braintumouruk.org.uk
Complex Regional Pain Syndrome
See under Reflex Sympathy Dystrophy
Cystitis
Cystitis and Overactive Bladder Foundation
76 High Street
Stony Stratford
Buckinghamshire
MK11 1AH
Tel:01908 569169
www.cobfoundation.org
Disability
DIAL UK
St Catherine's
Tickhill Road
Doncaster
DN4 8QN
Tel: 01302 310 123
www.dialuk.org.uk
enquiries@dialuk.org.uk
Limbless Association
Rehabilitation Centre
Roehampton Lane
London
SW15 5PR
Tel: 020 8788 1777
Helpline: 0845 230 0025
www.limbless-association.org
RADAR (Royal Association for Disability
and Rehabilitation)
12 City Forum
250 City Road
London
EC1V 8AF
Tel: 020 7250 3222
Minicom: 020 7250 4119
www.radar.org.uk
Dystonia
The Dystonia
Society
1st Floor 89 Albert Embankment
London
SE1 7TP
Tel: 0845 458 6211
Fax: 0845 458 6311
Helpline 0845 458 6322 Monday – Friday
10 am – 4 pm
Website www.dystonia.org.uk
Admin Email info@dystonia.org.uk
Support Email support@dystonia.org.uk
Endometriosis
The National Endometriosis Society
50 Westminster Palace Gardens
Artillery Row
London SW1P 1RL
Tel: 020 7222 2781
Helpline: 0808 808 2227
www.endo.org.uk
Endometriosis SHE Trust (UK)
First Floor, The Chestnuts
New Cross Hospital
Wednesfield Road
Wolverhampton
WV10 0QP
www.shetrust.org.uk
Fibromyalgia
Fibromyalgia Association UK
PO Box 206
Stourbridge
West Midlands
DY9 8YL
Helpline: 0870 220 1232
Benefits helpline: 0870 751 7389
www.fibromyalgia-associationuk.org
FibroAction
www.fibroaction.org
Gout
UK Gout Society
PO Box 527
London WC1V 7YP
www.ukgoutsociety.org
Herpes
Herpes Viruses Association
41 North Road
London N7 9DP
Tel: 0845 123 2305
www.herpes.org.uk
See also Shingles
Intestinal Disorders
National Association
for Colitis and Crohn’s Disease
4 Beaumont House
Sutton Road
St Albans AL1 5HH
Tel:0845 130 2233
www.nacc.org.uk
Colostomy Association
15 Station Road
Reading RG1 1LG
Helpline:0800 587 6744
www.colostomyassociation.org.uk
Irritable Bowel Syndrome
(IBS) Network
Unit 5
53 Mowbray Street
Sheffield S3 8EN
Tel: 0114 272 32 53
www.ibsnetwork.org.uk
Kidney
British Kidney Patient Association
Bordon
Hampshire
GU35 9JZ
Tel: 01420 472 021/2
www.britishkidney-pa.co.uk
Lichen Planus
UK Lichen Planus
c/o 14 Newbury Avenue
Calne
Wilts
SN11 9UN
www.uklp.org.uk
admin@uklp.co.uk
Lupus
Lupus UK
St James' House
Eastern Rd
Romford
Essex RM1 1BA
Tel: 01708 731 251
www.lupusuk.org.uk
Meningitis
Meningitis Research
Foundation
www.meningitis.org
ME (Myalgic Encephalomyelitis)
Action for ME
3rd Floor
Canningford House
38 Victoria Street
Bristol BS1 6BY
Tel:0845 1232 380
www.afme.org.uk
ME Association
7 Apollo Office Court
Radclive Road
Gawcott
Buckinghamshire
MK18 4DF
Tel: 01280 818 964
www.meassociation.org.uk
ME Connect
ME Association's information and listening service
Tel: 0870 444 1836
www.meassociation.org.uk/meconnect.htm
Migraine
Migraine Action Association
Unit 6, Oakley Hay Lodge Business Park
Great Folds Road
Great Oakley
Northnats NN18 9AS
Tel: 01536 461 333
www.migraine.org.uk
info@migraine.org.uk
Migraine Trust
2nd Floor
55-56 Russell Square
London
WC1 4HP
Tel: 020 7436 1336
www.migrainetrust.org
Motor Neurone
Motor Neurone Disease Association
PO Box 246
Northampton
NN1 2PR
Helpline: 08457 62 62 62
www.mndassociation.org
MS (Multiple Sclerosis)
Action MS *
Actionville, Knockbracken Healthcare Park
Saintfield Road
Belfast BT8 8BH
Tel: 028 9079 0707
Helpline: 0800 028 8833
www.actionms.co.uk
info@actionms.co.uk
* Action MS is a registered charity with
the Northern Ireland Authority
MS Society of GB & NI
MS National Centre
372 Edgware Road
London NW2 6ND
Helpline: 0808 800 8000
www.mssociety.org.uk
Osteoporosis
National Osteoporosis Society
Manor Farm, Skinners Hill,
Camerton, Bath BA2 0PJ
Helpline 0845 450 0230
www.nos.org.uk
Paget's Disease
The Paget's Association
323 Manchester Road
Walkden, Worsley
Manchester
M28 3HH
Tel. No: +44 (0) 161 799 4646
Fax No: +44 (0) 161 799 6511
Website: www.paget.org.uk
Pain
Action on Pain
PO Box 134
Shipdham
Norfolk IP25 7PJ
Tel: 01362 820750
Helpline: 0845 603 1593
www.action-on-pain.co.uk
aopisat@btinternet.com
Pain Concern
1 Civic Square
Tranent
EH33 1LH
Tel 01875 614537
Fax 01875 614505
E-mail info@painconcern.org.uk
www.painconcern.org.uk
HELPLINE 0844 499 4676
Pain Association of Scotland
Head Office
Cramond House
Cramond Glebe Rd
Edinburgh
EH4 6NS
Tel: 0800 783 6059
www.painassociation.com
The Pain Relief Foundation
Clinical Sciences Centre
University Hospital Aintree
Lower Lane
Liverpool
L9 7AL
Tel: 0151 529 5820
www.painrelieffoundation.org.uk
For information pack please send A4 SAE with 50p postage
DIPEx
See General
Has excellent chronic pain module
SMILE
8 Oxford Road
Bootle
Merseyside
L20 9HW
Tel: 0151 284 3822
PaIN PUT in Perspective (PIPP)
http://www.ppip.org.uk/Default.aspx
Parkinson's
Parkinson's Disease Society
215 Vauxhall Bridge Road
London
SW1V 1EJ
Tel : 020 7931 8080
Helpline: 0808 800 0303
www.parkinsons.org.uk
Pelvic Pain
Pelvic Pain Support Network
PO Box 6559
Poole
Dorset
BH12 9DP
info@pelvicpain.org.uk
www.pelvicpain.org.uk
Polio
The British Polio Fellowship
Eagle Office Centre
The Runway
South Ruislip
Middlesex
HA4 6SE
Tel: 0800 0180586
www.britishpolio.org.uk
info@britishpolio.org.uk
Reflex Sympathy Dystrophy and Complex regional
pain syndrome
RSD UK
323 Leymoor Road
Golcar
Huddersfield
HD7 4QQ
Helpline: 0845 22 66 008
Shingles
Shingles Support Society
41 North Rd
London
N7 9DP
Tel: 0845 123 2305
www.herpes.org.uk/shingles
See also Herpes
Sickle Cell
Sickle Cell Society
54 Station Rd
London NW10 4UA
Tel: 020 8961 7795
www.sicklecellsociety.org
Stroke
Stroke Association
Stroke House
240 City Road
London EC1V2PR
Helpline:0845 30 33 100
www.stroke.org.uk
Trigeminal Neuralgia
Trigeminal Neuralgia Association
UK
PO Box 234
Oxted
Surrey
RH8 8BE
Tel: 01883 370214
www.tna.org.uk
Vulval Pain
Vulval Pain Society *
PO Box 7804
Nottingham
NG3 5ZQ
www.vulvalpainsociety.org
* The Vulval Pain Society is not a registered charity
General
DIPEx (Database of patient experiences)
7200 The Quorum
Oxford Business Park North
Oxford OX4 2JZ
Tel: 01865 487176
www.dipex.org
European Federation of IASP Chapters
(EFIC)
Ms Sarah Wheeler, Executive Officer
Foukithidou 2
16343 Iliopoulis
Athens
Greece
Tel: +30 210 992 6335
Fax: +30 210 992 6382
Email: efic@internet.gr
www.efic.org
Expert Patient Programme
www.expertpatients.nhs.uk
International Association for the Study
of Pain (IASP)
Secretariat
111 Queen Anne Avenue N., Suite 501
Seattle
WA 98109-4955
USA
Tel: +1 206 283 0311
Fax: +1 206 283 9403
www.iasp-pain.org
Neurological Alliance
Stroke House
240 City Road
London
EC1V 2PR
Tel: 020 77566 1540
www.neural.org.uk
Patients' Association
PO Box 935
Harrow
Middlesex
HA1 3YJ
Tel: 020 8423 9111
Helpline: 0845 608 4455
www.patients-association.com
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