Useful addresses

The organisations are listed alphabetically under each pain category; unless stated otherwise, all the organisations are registered charities.
Please note: The British Pain Society is not responsible for the content of external websites.

If you would like your organisation added to this list please fill out the attached form.

http://www.britishpainsociety.org/static/uploads/resources/files/Weblink_Permissions_Request__Form_BPS_1.pdf

Contents

  1. Ankylosing Spondylitis
  2. Arthritis
  3. Back Pain
  4. Cancer
  5. Complex Regional Pain Syndrome
  6. Cystitis
  7. Disability
  8. Dystonia
  9. Endometriosis
  10. Fibromyalgia
  11. General
  12. Gout
  13. Herpes
  14. Intestinal Disorders
  15. Kidney
  16. Lichen Planus
  17. Lupus
  18. Meningitis
  19. Mesothelioma
  20. ME (Myalgic Encephalomyelitis)
  21. Migraine
  22. Motor Neurone
  23. MS (Multiple Sclerosis)
  24. Osteoporosis
  25. Paget's Disease
  26. Pain
  27. Parkinson's
  28. Pelvic Pain
  29. Polio
  30. Shingles
  31. Stroke
  32. Trigeminal Neuralgia
  33. Vulval Pain

Ankylosing Spondylitis

National Ankylosing Spondylitis Society (NASS)
4 Albion Court
Hammersmith
London
W6 0QT
Tel: 0208 741 1515
Email: admin@nass.co.uk
Web: www.nass.co.uk

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Arthritis

Arthritis Research Campaign
Copeman House
St Mary's Gate
Chesterfield
Derbyshire
S41 7TD
Tel: +44 (0) 300 790 0400
Fax: +44 (0) 300 790 0401
Email: enquiries@arthritisresearchuk.org
Web: www.arthritisresearchuk.org

Arthritis & Musculoskeletal Alliance (ARMA)
Bride House
18-20 Bride Lane
London
EC4Y 8EE
Tel: +44 (0)20 7842 0910/11
Fax: +44 (0)20 7842 0901
Web: www.arma.uk.net

Arthritis Care
Floor 4
Linen Court
10 East Road
London
N1 6AD
Tel: 020 7380 6500
Helpline: 0808 800 4050
Web: www.arthritiscare.org.uk

National Rheumatoid Arthritis Society (NRAS)
Ground Floor
Gardner Road
Maidenhead
Berkshire
SL6 7RJ
Tel: 0162 882 3524 / 0845 458 3969
Fax: 0845 458 3971
Helpline (Free): 0800 298 7650
Email: helpline@nras.org.uk
Web: www.nras.org.uk

 

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Back Pain

BackCare
16 Elmtree Road
Teddington
Middlesex
TW11 8ST
Tel: 0208 977 5474
Email: info@backcare.org.uk
Web: www.backcare.org.uk

Brain and Spine Foundation
3.36 Canterbury Court
Kennington Park
1-3 Brixton Road
London
SW9 6DE
Tel: 0207 793 5900
Email: info@brainandspine.org.uk
Web: www.brainandspine.org.uk

Spinal Injuries Association
SIA House
2 Trueman Place
Oldbrook
Milton Keynes
MK6 2HH
Tel: 0845 678 6633
Fax: 0845 070 6911
Helpline: 0800 980 051
Email: sia@spinal.co.uk
Web: www.spinal.co.uk

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Cancer

Breast Cancer Care
5-13 Great Suffolk Street
London
SE1 0NS
Tel: 0845 077 1895
Helpline: 0808 800 6000
Email: info@breastcancercare.org.uk
Web: www.breastcancercare.org.uk

Leukaemia Care Society
1 Birch Court
Blackpole East
Worcester
WR3 8SG
Tel: 0190 5755 977
Helpline: 0800 8010 444
Email: care@leukaemiacare.org.uk
Web: www.leukaemiacare.org.uk

Lymphoma Association
PO Box 386
Aylesbury
HP20 2GA
Tel: 0129 6619 400
Helpline: 0808 808 5555
Email: information@lymphomas.org.uk
Web: www.lymphomas.org.uk

Macmillan Cancer Relief
Macmillan Cancer Support
89 Albert Embankment
London
SE1 7UQ
Tel: 020 7840 7840
Helpline: 0808 808 0000
Web: www.macmillan.org.uk

Brain Tumour Charity
Hartshead House
61-65 Victoria Road
Farnborough
Hampshire
GU14 7PA
Tel: 0125 274 9990
National Helpline: 0808 800 0004
Email: enquiries@thebraintumourcharity.org
Web: www.braintumourcharity.org.uk

Mesothelioma UK
Mesothelioma UK Charitable Trust
c/o Glenfield Hospital
Groby Road
Leicester
LE3 9QP
Freephone: 0800 169 2409
Email: mesothelioma.uk@uhl-tr.nhs.net
Web: www.mesothelioma.uk.com

 

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Complex Regional Pain Syndrome

Burning Nights CRPS

Burning nights CRPS can be contacted via the contact form on their website: http://www.burningnightscrps.org/contact/

Phone: 01663 795 055
Email: support@burningnightscrps.org 

website: http://www.burningnightscrps.org/

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Cystitis

Cystitis and Overactive Bladder Foundation
Kings Court
17 School Road
Hall Green
Birmingham
B28 8JG
Advice Line: 0121 702 0820
Email: info@cobfoundation.org
Webwww.cobfoundation.org

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Disability

Scope
6 Market Road
London
N7 9PW
Helpline: 0808 800 3333
Email: helpline@scope.org.uk
Web: www.scope.org.uk

Limbless Association
Unit 10
Waterhouse Business Centre
2 Cromar Way
Chelmsford
Essex
CM1 2QE
Tel: 0124 5216 670
Helpline: 0800 644 0185
Limb Loss Legal Panel: 0800 644 0186
Email: enquiries@limbless-association.org
Web: www.limbless-association.org

Disability Rights UK
Ground Floor
CAN Messanine
49-51 East Road
London
N1 6AH
Tel: 0207 250 8181
Email: enquiries@disabilityrightsuk.org
Web: www.disabilityrightsuk.org

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Dystonia

The Dystonia Society
2nd Floor 89 Albert Embankment
Vauxhall
London
SE1 7TP
Tel: 0207 793 3651
Helpline: 0207 793 3651
Email: info@dystonia.org.uk
Web: www.dystonia.org.uk
 

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Endometriosis

Endometriosis UK
Suite 1&2
46 Manchester Street
London
W1U 7LS
Tel: 020 7222 2781
Helpline: 0808 808 2227
Web: www.endometriosis-uk.org

Endometriosis SHE Trust (UK)
Silveroaks Farm
Waldron
Heathfield
East Sussex
TN21 0RS
Email: shetrust@shetrust.org.uk
Web: www.shetrust.org.uk

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Fibromyalgia

Fibromyalgia Association UK
Studio 3007
Mile End Mill
12 Seedhill Road
Paisley
PA1 1JS
Tel: 0844 826 9022
Fax: 0844 826 9033
Helpline: 0844 887 2444
Email: charity@fmauk.org
Web: www.fmauk.org

FibroAction
Tel: 0844 443 5422
Email: info@fibroaction.org
Web: www.fibroaction.org

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General

CenterWatch (Database of clinical trials) *
http://www.centerwatch.com/clinical-trials/pns/

* CentreWatch is not a registered charity

DIPEx (Database of patient experiences)
Email: info@healthtalkonline.org
Web: www.healthtalk.org

European Federation of IASP Chapters (EFIC)
European Pain Federation
Grensstraat 7
Mailbox 3
B-1831 Diegem
Belgium
Tel: +32 2 251 55 10
Fax: +32 2 251 48 10
E-mail: secretary@efic.org
Web: www.efic.org

Expert Patient Programme
Tel: 0333 344 5840
Email: hello@selfmanagementuk.org
Web: www.expertpatients.co.uk

International Association for the Study of Pain (IASP)
Secretariat
1510 H St. NW, Suite 600
Washington, DC 20005-1020
Tel: +1-202-524-5300
Fax: +1-202-524-5301
Email: ISAPdesk@iasp-pain.org
Web: www.iasp-pain.org

Neurological Alliance
Dana Centre
165 Queen's Gate
London
SW7 5HD
Tel: 0207 584 6457
Email: arlene.wilkie@neural.org.uk
Web: www.neural.org.uk

Patients' Association
PO Box 935
Harrow
Middlesex
HA1 3YJ
Tel: 020 8423 9111
Helpline: 020 8423 8999
Email: helpline@patients-association.com
Web: www.patients-association.org.uk

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Gout

UK Gout Society
Secretariat
PO Box 90
Hindhead
GU27 9FW
Email: info@ukgoutsociety.org
Web: www.ukgoutsociety.org

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Herpes

Herpes Viruses Association
41 North Road
London
N7 9DP
Tel: 0845 123 2305
Email: info@herpes.org.uk
Web: www.herpes.org.uk

See also Shingles

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Intestinal Disorders

National Association for Colitis and Crohn’s Disease
4 Beaumont House
Sutton Road
St Albans
AL1 5HH
Tel: 0845 130 2233
Email: enquiries@crohnsandcolitis.org.uk
Web: www.nacc.org.uk

Colostomy Association
Enterprise House
95 London Street
Reading
RG1 5QA
Tel: +44 (0)118 939 1537
Helpline: 0800 328 4257
Email: cass@colostomyassociation.org.uk
Web: www.colostomyassociation.org.uk

Irritable Bowel Syndrome (IBS) Network
Unit 1.12 SOAR Works
14 Knutton Road
Sheffield
S5 9NU
Tel: 0114 272 3253
Email: info@theibsnetwork.org
Web: www.theibsnetwork.org

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Kidney

British Kidney Patient Association
3 The Windmills
St Mary's Close
Turk Street
Alton
GU34 1EF
Tel: 0142 054 1424
Email: info@britishkidney-pa.co.uk
Web: www.britishkidney-pa.co.uk

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Lichen Planus

Lichen Planus
Village Farmhouse
3 Donside Road
Alford
Aberdeenshire
AB33 8QB
Tel: 07581 674274 (answerphone service only)
Web: www.uklp.org.uk
 

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Lupus

Lupus UK
St James House
Eastern Road
Romford
Essex
RM1 3NH
Tel: 01708 731 251
Email: headoffice@lupusuk.org.uk
Web: www.lupusuk.org.uk

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Meningitis

Meningitis Research Foundation
Midland Way
Thornbury
Bristol
BS35 2BS
Tel: 0145 428 1811
Fax: 0145 428 1094
Helpline: 0808 800 3344
Email: info@meningitis.org
Web: www.meningitis.org

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Mesothelioma

Mesothelioma Group

http://www.mesotheliomagroup.com/

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ME (Myalgic Encephalomyelitis)

Action for ME
42 Temple Street
Keynsham
Bristol
BS31 1EH
Tel: 0117 927 9551
Fax: 0117 986 1152
Email: admin@actionforme.org.uk
Web: www.actionforme.org.uk

ME Association
7 Apollo Office Court
Radclive Road
Gawcott
Buckinghamshire
MK18 4DF
Tel: 01280 818 964
Email: admin@meassociation.org.uk
Web: www.meassociation.org.uk

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Migraine

Migraine Action Association
4th Floor
27 East Street
Leicester
LE1 6NB
Tel: 0045 601 1033
Email: info@migraine.org.uk
Web: www.migraine.org.uk

Migraine Trust
55-56 Russell Square
London
WC1 4HP
Tel: 0207 631 6970
Fax: 0207 436 2886
Email: info@migrainetrust.org
Web: www.migrainetrust.org

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Motor Neurone

Motor Neurone Disease Association
PO Box 246
Northampton
NN1 2PR
Tel: 0160 425 0505
Fax: 0160 462 4726 / 0160 463 8289
Helpline: 0845 762 6262
Email: enquiries@mndassociation.org
Web: www.mndassociation.org

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MS (Multiple Sclerosis)

Action MS *
Knockbracken Healthcare Park
Saintfield Road
Belfast
BT8 8BH
Tel: 028 9079 0707
Email: info@actionms.co.uk
Web: www.actionms.co.uk

* Action MS is a registered charity with the Northern Ireland Authority

MS Society of GB & NI
MS Society
MS National Centre (MSNC)
372 Edgware Road
London
NW2 6ND
Tel: 0208 438 0700
Fax: 0208 438 0701
Helpline: 0808 800 8000
Email: governance@mssociety.org.uk
Web: www.mssociety.org.uk

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Osteoporosis

National Osteoporosis Society
Camerton
Bath
BA2 0PJ
Tel: 0176 147 1771
Helpline: 0845 450 0230
Email: info@nos.org.uk
Web: www.nos.org.uk

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Paget's Disease

The Paget's Association
Suite 5
Moorfield House
Moorside Road
Swinton
Manchester
M27 0EW
Tel: +44 (0) 161 799 4646
Helpline: 077135 68197
Email: helpline@paget.org.uk
Web: www.paget.org.uk

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Pain

Action on Pain
PO Box 134
Shipdham
Norfolk
IP25 7XA
Helpline: 0845 603 1593
Email: aopisat@btinternet.com
Web: www.action-on-pain.co.uk

Pain Concern
Unit 1-3
62-66 Newcraighall Road
Edinburgh
EH15 3HS
Tel: 0131 669 5951
Helpline: 0300 123 0789
Email: info@painconcern.org.uk
Web: www.painconcern.org.uk

Pain Association of Scotland
Suite D
Moncrieffe Business Centre
Friarton Road
Perth
PH2 8DG
Helpline: 0800 783 6059
Email: info@painassociation.com
Web: www.painassociation.com

The Pain Relief Foundation
Clinical Sciences Centre
University Hospital Aintree
Lower Lane
Liverpool
L9 7AL
Tel: 0151 529 5820
Fax: 0151 529 5821
Email: secretary@painrelieffoundation.org.uk
Web: www.painrelieffoundation.org.uk

Pain UK
c/o SSS
41 North Road
London
N7 9DP
Email: info@painuk.org
Twitter: @pain_uk
Web: www.painuk.org

DIPEx
See General
Has excellent chronic pain module

SMILE Liverpool
Room 4
Christchurch Youth and Community Centre
8 Oxford Road
Bootle
Liverpool
L20 9HW
Tel: 0151 284 3822
Web: www.smileliverpool.co.uk

Away with Pain
Dedicated to providing information and support to sufferers of chronic pain
Web: www.awaywithpain.co.uk

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Parkinson's

Parkinson's Disease Society
215 Vauxhall Bridge Road
London
SW1V 1EJ
Tel: 020 7931 8080
Fax: 0207 233 9908
Email: hello@parkinsons.org.uk
Web: www.parkinsons.org.uk

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Pelvic Pain

Pelvic Pain Support Network
21 Stourpaine Road
Poole
Dorset
BH17 9AT
Email: info@pelvicpain.org.uk
Web: www.pelvicpain.org.uk

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Polio

The British Polio Fellowship
Citibase
44 Clarendon Road
Watford
Hertfordshire
WD17 1JJ
Helpline: 0800 043 1935
Email: info@britishpolio.org.uk
Web: www.britishpolio.org.uk
info@britishpolio.org.uk

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Shingles

Shingles Support Society
41 North Rd
London
N7 9DP
Tel: 0845 123 2305
Email: info@herpes.org.uk  
Web: www.shinglessupport.org
See also, www.herpes.org.uk/shingles

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Stroke

Stroke Association
Stroke Association House
240 City Road
London
EC1V2PR
Tel: 0207 566 0300
Fax: 0207 490 2686
Helpline: 0845 303 3100
Email: info@stroke.org.uk
Web: www.stroke.org.uk

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Trigeminal Neuralgia

Trigeminal Neuralgia Association UK
PO Box 234
Oxted
Surrey
RH8 8BE
Tel: 0188 337 0214
Email: admin@tna.org.uk
Webwww.tna.org.uk

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Vulval Pain

Vulval Pain Society *
PO Box 7804
Nottingham
NG3 5ZQ
Web: www.vulvalpainsociety.org

* The Vulval Pain Society is not a registered charity

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